- My Story
We found out at our 20 week scan that Clara had a condition called Congenital Diaphragmatic Hernia (CDH), something we’d never heard of before. The condition means that there’s a hole in baby’s diaphragm so the abdominal organs can move into the chest cavity, pushing the heart across, preventing the lungs from forming properly and taking up the space that they need to grow. It occurs in 1 in 2500 births and has a 50% survival rate.
We were one of the lucky ones, though she had a very difficult start. Pulmonary hypertension, surgery, bowel malrotation, sepsis, she battled through and made it out of the other side. Sadly many babies don’t.
CDH UK is an amazing charity that helps families following diagnosis, and is pushing for more research to find out the cause of this devastating condition.
I’m not a runner, but I think raising any money for this charity is worth the effort of running (walking...crawling..!) 26 miles in a month.
Please do sponsor me if you can.